Just over a month ago I began a new MS modifying drug called Avonex. If it wasn’t 3am, I would discuss what this is and how it works. All I know right now is that I haven’t felt this miserable in quite some time. My entire body hurts from head to toe. Even my eye balls hurt. It’s an intense ache, sort of like body aches from the flu, only much worse. And the nausea…..oi. I’m fairly certain my ham fried rice from dinner will be making a reappearance any time now.
I have no idea what to do with myself. I’ve taken the maximum dose of Aleve and won’t be able to take anything else for hours. When I’m not tossing in bed, I’m pacing the house. I hurt too much to even sit still for very long.
Worst of all, it’s Easter weekend. Why does it always have to hit me the hardest on holidays? But this is just another reality of living with MS…the treatment side effects. This should pass by Sunday morning. At least, I pray it will. In the mean time, I am trying desperately to find distraction. So far, nothing is working.
It’s going to be a long weekend.
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You know and I know that there's nothing helpful, really, that I can say right now. I can't imagine feeling that (what seems like) endless misery. Just hang in. Hang on, sister. I am pulling for you. xoxo
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